Hannahs Hope For Giant Axonal

Hannah's Hope Fund for Giant Axonal Neuropathy, Inc. is a 501c3 public charity whose mission is to raise funds to support the development of a treat The mission of Hannah's Hope Fund (HHF) is to raise funds for a treatment and cure of GAN. Lori and M...

Hannah's Hope Fund for Giant Axonal Neuropathy, Inc. is a 501c3 public charity whose mission is to raise funds to support the development of a treat The mission of Hannah's Hope Fund (HHF) is to raise funds for a treatment and cure of GAN. Lori and Matt Sames co-founded HHF following the diagnosis of their youngest daughter, Hannah, in March of 2008. At the time of Hannah's diagnosis, Lori was only able to find one scientist in the world actively studying GAN, Dr. Pascale Bomont, in France. Now, the scientists working with Hannah's Hope Fund have a GAN gene therapy Investigational New Drug (IND) that we are working to push to Phase 1 and Phase 2 clinical trials. However, once HHF is done paying for the FDA safety studies required to begin a human Phase 1 trial, we won't have money left to fund the clinical trials. Please help us and donate.