Saving lives through education, advances in treatment, and finding a cure for Barth syndrome.

The Barth Syndrome Foundation (BSF) and its affiliates are a group of international non-profit organizations that provide information, resources and services for healthcare professionals and families worldwide. Advising the group is a world-class Scientific and Medical Advisory Board (SMAB), comprised of clinicians and scientists who are leading experts in Barth syndrome. The BSF website (www.barthsyndrome.org) contains the most up-to-date educational materials and research findings, including ...

The Barth Syndrome Foundation (BSF) and its affiliates are a group of international non-profit organizations that provide information, resources and services for healthcare professionals and families worldwide. Advising the group is a world-class Scientific and Medical Advisory Board (SMAB), comprised of clinicians and scientists who are leading experts in Barth syndrome. The BSF website (www.barthsyndrome.org) contains the most up-to-date educational materials and research findings, including a comprehensive on-line library which serves both the medical community and affected families. Resources: Research Grant Program; Barth Syndrome Registry & Repository; FACT Sheets; Conference Video DVDs; Barth Syndrome Journal; Healthcare Educational Brochure; Barth Syndrome Bibliography